11th September 20190

Going on holiday: Airport Experiences

To be honest I’m not entirely sure where to start with this post. A lot of people have seen my Instagram post which I wrote mid grief at how we had been treated when...

by Louise Ormrod

The Lily Foundation

25th June 20180

I feel full of oxytocin

This weekend we went to The Lily Foundation family weekend in Warwickshire. Last year, you might remember, we ended up in hospital and missed the entire weekend so this year I...

by Louise Ormrod

Milestones

13th June 20180

As a Mother of a child with additional needs..

you don’t tend to take milestones too seriously. Well, I suppose, in one sense you take them very seriously (because each one is a miracle) but you don’t generally...

by Louise Ormrod

General

Milestones

9th May 20180

Once upon a time I loved summer…

and I was such a sun worshipper. I would do anything to find the hottest place to visit on holiday (because the UK was never hot enough for me) and read books whilst working...

by Louise Ormrod

General

4th April 20181

My Child Can Teach Yours…

Whilst flicking through Facebook recently, looking at Autism awareness posts, it made me realise how many mothers I am friends with whose children don’t fit into the...

by Louise Ormrod

Hospital

1st July 20160

Here we go again…

Wednesday Freddie (and me) ended up spending another night in hospital. His blood pressure was high (side effect of the steroids) they had to monitor him and give him...

by Louise Ormrod

Hospital

29th June 20160

We’re back in hospital…

Freddie has high blood pressure because of the steroids. It’s 3:40am and I’ve had two hours broken sleep because Freddie won’t sleep unless he’s on me. It’s too much. I’m so tired.

by Louise Ormrod

Diagnosis

26th June 20160

It’s still early days

We’ve had the second check up with Freddie’s consultant, this time his Community Nurse and Child Epilepsy Support Nurse were both there. It’s reassuring they all work very...

by Louise Ormrod