8th October 20180

It’s Okay To Feel Sad

A couple of months ago I went to visit my GP something which resulted in her diagnosing me with stress. It all seemed a little pointless to be honest, usually if you’re...

by Louise Ormrod

Diagnosis

30th August 20180

What we weren’t told in Freddie’s clinical diagnosis appointment..

When you have a child with a life-limiting illness and young life expectancy there’s a lot of emotion and heartache around the diagnosis. I’ve never hidden the...

by Louise Ormrod

General

4th April 20181

My Child Can Teach Yours…

Whilst flicking through Facebook recently, looking at Autism awareness posts, it made me realise how many mothers I am friends with whose children don’t fit into the...

by Louise Ormrod

Freddies Mum

General

31st December 20160

Dear 2016…

I fucking hate you, you broke my heart in a way I never knew was possible, but in doing so, you made me who I am and made me a stronger, better version of myself. You taught...

by Louise Ormrod

Hospital

1st July 20160

Here we go again…

Wednesday Freddie (and me) ended up spending another night in hospital. His blood pressure was high (side effect of the steroids) they had to monitor him and give him...

by Louise Ormrod

Hospital

29th June 20160

We’re back in hospital…

Freddie has high blood pressure because of the steroids. It’s 3:40am and I’ve had two hours broken sleep because Freddie won’t sleep unless he’s on me. It’s too much. I’m so tired.

by Louise Ormrod

Diagnosis

26th June 20160

It’s still early days

We’ve had the second check up with Freddie’s consultant, this time his Community Nurse and Child Epilepsy Support Nurse were both there. It’s reassuring they all work very...

by Louise Ormrod

Diagnosis

24th June 20160

These moments..

mean the absolute world to James and me. These smiles come so rarely and when they do they’re gone in a second, I’m shocked I managed to capture one. I can’t believe how much...

by Louise Ormrod

Diagnosis

22nd June 20160

There will be bad days

Today was a bad day. Freddie had a bad day. The good ones give me hope, faith and strength, the bad ones make me wonder how I’ll cope. His eyes were vacant today and he was...

by Louise Ormrod

Hospital

16th June 20160

Maybe some progress…

The last two days have been a blur, kind of in a good way – if that’s possible. Freddie started the steroids (Presinsolone) and they’ve stopped the seizures (for now)...

by Louise Ormrod

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