2018…
the third year since we found out about Mito comes to a close and it’s also the year our son saw his third Birthday. A day we never thought we’d see. I want to...
Louise Ormrod
Category
Uncategorized
Louise Ormrod
One Year of Mito
Although, to be fair, a year ago we had still never heard the term ‘Mitochondrial Disease’ however, it was a year ago today the events started where we would be...
Louise Ormrod
Trip to the GP
Freddie has been coughing all week and yesterday I had very slight concerns over his breathing and thought he’d been a little sleepy and withdrawn. I phoned our Doctors...
Louise Ormrod
Endometriosis
The majority of my adult life I have suffered with endometriosis. It was diagnosed when I was 23 and I went on to have four procedures to remove it from places such as my...
Louise Ormrod
So today I went to the next village..
to run some errands and one of the shop owners starting cooing over Freddie. He was being his usual happy self and had the charm on, which she loved. She asked me the dreaded...
Louise Ormrod
Kisses
There’s been a beautiful development with Freddie lately, something which I never thought I’d see. He’s started kissing – to be fair, to the untrained...
Louise Ormrod
Sometimes I Have Days Off…
and this week I had an off day, by an ‘off’ day I mean a complete breakdown. These days don’t happened very often but when they do, my goodness, do the tears...
Louise Ormrod
Apologies
for the radio silence but it’s been a pretty busy week. Freddie has met his new therapist team (we boarder two NHS trusts and they’ve decided we need to be moved from the...
Louise Ormrod
We’re home!
It was a short 24 hour hospital stay. Friday morning wasn’t great, Freddie didn’t want to eat or drink and his breathing was still concerning. I thought we’d be in for another...
Louise Ormrod
AND, here we go again…
It’s 6:04 and I’m laying in a hospital bed after approximately one or two hours broken sleep all night whist listening to James sing to a distressed, overtired...
Louise Ormrod