Dearest Freddie…
I genuinely can’t believe you’re three! THREE YEARS OLD!! You’re not a baby anymore, you’re a little boy. An incredible little boy at that. Your third...
We are on the radio (again)
Earlier this year The Lily Foundation got in touch with me and asked if I would write something about how the charity have helped us since receiving Freddie’s diagnosis....
What we weren’t told in Freddie’s clinical diagnosis appointment..
When you have a child with a life-limiting illness and young life expectancy there’s a lot of emotion and heartache around the diagnosis. I’ve never hidden the...
Around this this time two years ago…
we visited Freddie’s nursery for the first time. Not to scout it for nursery purposes but because one of Freddie’s nurses had suggested we make contact because...
I feel full of oxytocin
This weekend we went to The Lily Foundation family weekend in Warwickshire. Last year, you might remember, we ended up in hospital and missed the entire weekend so this year I...
As a Mother of a child with additional needs..
you don’t tend to take milestones too seriously. Well, I suppose, in one sense you take them very seriously (because each one is a miracle) but you don’t generally...
Yesterday was the day…
two years since that heart breaking night and for the past week or so I have been drafting posts about the dreaded anniversary. I’ve started writing so many times, all...
Is it called an anniversay?
A week or so ago I said to James ‘it’s coming up to Freddie’s anniversary again’ he said ‘it’s not an anniversary, don’t call it...
Once upon a time I loved summer…
and I was such a sun worshipper. I would do anything to find the hottest place to visit on holiday (because the UK was never hot enough for me) and read books whilst working...