I’m not a good runner…
but I think I’ve said that before! As hard as I try my times seem to be capped and once I reach a certain speed I can’t improve any further. I do try, but I...
The Virgin London Marathon..
This year Freddie’s Uncle (my brother) ran The London Marathon for The Lily Foundation and we took Freddie to watch. I can’t remember exactly how it came about...
My Child Can Teach Yours…
Whilst flicking through Facebook recently, looking at Autism awareness posts, it made me realise how many mothers I am friends with whose children don’t fit into the...
I know I’ve not written for a while…
over a month in actual fact! To be honest, I’ve not really had much to say, well I feel like I’ve not had much to say anyway. Perhaps I actually have. Part of the...
Index Finger Discovery
In the last month or so Freddie Cheese has discovered his index finger on his right hand (lazy lefty is always much further behind on milestones) and it’s amazing, not only...
Today…
we went to Broomfield Hospital for an appointment with Freddie’s dermatologist, we arrived 20 minutes early so decided to grab a drink before we went through to the waiting...
2017…
was another year of knowing mitochondrial disease exists, another year watching it fight against our boy, feeling the heartache and loneliness that comes with it. Before this...
Our Christmas in a nutshell
Annual Freddie & his stocking picture (look at his bed hair!), a few from our lunch out (which lastest four hours and Freddie was a superstar – meal was incredible...
Christmas Eve at last…
I’ve been so excited about Christmas this year. Partly, I think, because we had such a shit summer I really needed hope of some stable time and something to look forward too,...