Long Time No See
I seem to be starting all my blog post since 2018 with “I’ve not written in a while” or “I’m going to start writing more”. Then I...
Louise Ormrod
Tag
mils
Louise Ormrod
2018…
the third year since we found out about Mito comes to a close and it’s also the year our son saw his third Birthday. A day we never thought we’d see. I want to...
Louise Ormrod
Christmas Eve
Christmas can be hard for some people, I’m fully aware of that. All the promotion and commercialisation of what it should look like and how happy we are supposed to be can be...
Louise Ormrod
What we weren’t told in Freddie’s clinical diagnosis appointment..
When you have a child with a life-limiting illness and young life expectancy there’s a lot of emotion and heartache around the diagnosis. I’ve never hidden the...
Louise Ormrod
I feel full of oxytocin
This weekend we went to The Lily Foundation family weekend in Warwickshire. Last year, you might remember, we ended up in hospital and missed the entire weekend so this year I...
Louise Ormrod
Yesterday was the day…
two years since that heart breaking night and for the past week or so I have been drafting posts about the dreaded anniversary. I’ve started writing so many times, all...
Louise Ormrod
Is it called an anniversay?
A week or so ago I said to James ‘it’s coming up to Freddie’s anniversary again’ he said ‘it’s not an anniversary, don’t call it...
Louise Ormrod
Speech and Language Therapy
Sorry I’m still very behind in my blogging! Turns out that being a full time mother, house keeper and athlete (in training) leaves very little time for hobbies! So,...
Louise Ormrod
Surprise Trip to London
James arranged a surprise trip to London last week and took us to see an interactive art exhibition then to Hawksmoor for lunch. I was really nervous but Freddie loved the...
Louise Ormrod
Freddie has been the making of me…
according to James (and my friend Claira). I don’t think he means that I am a natural earth mother and took to motherhood like a duck to water (far from it), I think he means...
Louise Ormrod