6th August 20200

Mummy, that boy is too old to be in a pushchair…

Does he talk? Does he walk? What’s that tube? Why can’t he eat? Look at that boy, I feel really sorry for him. What’s wrong with him? These are only a few of...

by Louise Ormrod

Anniversary

2nd June 20200

Four Long Years

This week it will be four years since we first heard the words “Mitochondrial Disease”. Four years since we dialed 111 because our baby was doing some strange...

by Louise Ormrod

General

24th May 20200

Long Time No See

I seem to be starting all my blog post since 2018 with “I’ve not written in a while” or “I’m going to start writing more”. Then I...

by Louise Ormrod

New Year

31st December 20190

2019…

I have sat in this chair and written every New Years Eve since Mito entered our lives uninvited. Each time I have tried to summarise my emotions about the twelve months gone....

by Louise Ormrod

Milestones

school

21st December 20190

The S Word…

When we found out I was expecting a boy I received so many comments along the lines of “how wonderful, a little boy. Oldest in the (school) year. He’ll be picked...

by Louise Ormrod

Birthday

24th September 20190

Dear Freddie…

Firstly, can I say… FOUR!! Wowzers! How have we got here?! How lucky are we?! Another year, another year of laughter, love, smiles and memories. We have done so much;...

by Louise Ormrod

Hospice

22nd June 20190

The H Word Photography Project

When we first started this project, I’m not sure any of us really knew what to expect or where this would take us. I had interpreted the project as simply taking photos;...

by Louise Ormrod

The Treehouse

28th October 20180

Hoisting

Recently, I have been spending time The Treehouse. I’m currently doing a photography workshop which will become an exhibition challenging the way people think about the...

by Louise Ormrod

General

8th October 20180

It’s Okay To Feel Sad

A couple of months ago I went to visit my GP something which resulted in her diagnosing me with stress. It all seemed a little pointless to be honest, usually if you’re...

by Louise Ormrod

Milestones

25th September 20181

Dearest Freddie…

I genuinely can’t believe you’re three! THREE YEARS OLD!! You’re not a baby anymore, you’re a little boy. An incredible little boy at that. Your third...

by Louise Ormrod

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