2nd June 20200

Four Long Years

This week it will be four years since we first heard the words “Mitochondrial Disease”. Four years since we dialed 111 because our baby was doing some strange...

by Louise Ormrod

General

24th May 20200

Long Time No See

I seem to be starting all my blog post since 2018 with “I’ve not written in a while” or “I’m going to start writing more”. Then I...

by Louise Ormrod

New Year

31st December 20190

2019…

I have sat in this chair and written every New Years Eve since Mito entered our lives uninvited. Each time I have tried to summarise my emotions about the twelve months gone....

by Louise Ormrod

Milestones

school

21st December 20190

The S Word…

When we found out I was expecting a boy I received so many comments along the lines of “how wonderful, a little boy. Oldest in the (school) year. He’ll be picked...

by Louise Ormrod

Hospice

22nd June 20190

The H Word Photography Project

When we first started this project, I’m not sure any of us really knew what to expect or where this would take us. I had interpreted the project as simply taking photos;...

by Louise Ormrod

Freddies Mum

General

The Treehouse

4th February 20170

Making Plans

Many months ago now Freddie’s nurse brought round a list of charities that might be helpful for us/Freddie. On that list were various things from wish charities, charities...

by Louise Ormrod

Freddies Mum

General

3rd February 20170

Freddie has been the making of me…

according to James (and my friend Claira). I don’t think he means that I am a natural earth mother and took to motherhood like a duck to water (far from it), I think he means...

by Louise Ormrod

Awareness

General

23rd January 20170

Freddie Broke My Heart Today.

After around half an hour waiting around in Next whilst they were trying to sort out a refund card which wasn’t showing the balance it was suppose to (it showed £2 not £24 so...

by Louise Ormrod

Fundraising

The Lily Foundation

21st January 20170

Tough Mudder

Sixteen of my friends have signed up to complete Tough Mudder with me this May. For those of you unfamiliar with the name, it’s a muddy obstacle course. It supports the Help...

by Louise Ormrod

Freddies Mum

General

20th January 20170

I Am Not Brave!

Last week I was talking to someone and she said something very interesting, which hadn’t occurred to me before. She said in order to be brave you have to have made the...

by Louise Ormrod

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