This is a photo of breakfast time for Freddie… this is our normal.
Breakfast consists of; levetiracetam, omeprazole, erythromycin, glycopyrronium bromide, co-quinone 10, Frebini original (or fibre, depending), water and a yoghurt! This is just breakfast, he has more medications repeated throughout the day plus movicol, inhaler twice daily and every other week he has azithromycin. I’m not even going to list his eczema creams or routine. Also to note, each time he’s hooked up to a Frebini feed he’s attached to the pump for 50 minutes.
Sometimes I forgot how normalised we are to this routine. Thought of a weetbix and sippy cup of water seem like a different life.
